Adrian Forsythe

Adrian Forsythe is the Advocacy Programs Specialist for the National Down Syndrome Society (NDSS) where he works to advance legislation beneficial to the Down syndrome community. Since 2016, Adrian has participated in advocacy initiatives on the federal and state levels and provided administrative support for the NDSS National Advocacy & Public Policy Center. Adrian also […]

Charlotte Woodward

Charlotte Woodward is the Community Outreach Associate for the National Down Syndrome Society (NDSS) where she supports public awareness and community outreach through public speaking, social media and writing a blog. She is also working to develop a magazine for and by individuals with Down syndrome. Charlotte was born with a heart condition and had […]

Kayla McKeon

Kayla McKeon is the Manager of Grassroots Advocacy for the National Down Syndrome Society (NDSS) where she works to advance legislation beneficial to the Down syndrome community. Kayla gained experience working with Members of Congress as an intern for Congressman John Katko of New York. She was named NDSS Self–Advocate of the Year in 2016 […]

Margot Rhondeau

Margot Rhondeau is the Senior Advisor, Health & Wellness for the National Down Syndrome Society (NDSS) where she leads the creation of resources and programming to improve health and wellness within the Down syndrome community. Margot joined NDSS in 2020, bringing 14 years of experience working in the health space, both internationally and nationally, to […]

Melissa Parisi

Dr. Melissa A. Parisi is the chief of the Intellectual and Developmental Disabilities Branch at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), National Institutes of Health (NIH). She joined the NICHD in October 2008, and currently oversees the Intellectual and Developmental Disabilities Research Centers program at NICHD. She is […]

Angela Lombardo

Angela Lombardo is the Program Coordinator for the Down Syndrome Program at Boston Children’s Hospital. She is also the Family Faculty for the Leadership and Education in Neurodevelopmental Disabilities Program. Through LEND, she runs a program called Linking Hands where LEND fellows are sent on home visits to families of children with special health care […]

Hiruy Meharena

Hiruy Meharena received his PhD in biomedical sciences from the University of California, San Diego. Dr. Meharena specializes in integrating genomics, biophysics, biochemistry, computational biology and molecular biology to understand and design therapeutic avenues for neurological disorders. His graduate school research focused on understanding the atomic principles governing a family of proteins known as Eukaryotic […]

Marina Simons

Marina is a speech-language pathologist at a Massachusetts middle school. She really enjoys working with adolescents with and without disabilities. She has an older brother, Nate, who has Down syndrome. Together they love to watch and talk sports, hike with the family dog, and eat delicious food.

Sam Stark

Sam has been running the brother/sister track of the annual conference since 2012 and has been working with individuals who have siblings with Down Syndrome for even longer. She is a licensed social worker and primarily works with teenagers/young adults and their families. Sam has a brother Chris who has Down Syndrome and (until the […]

Ray Glowner

Ray Glowner joins us from Down Syndrome Indiana, where his wife Stephanie works. He and Stephanie have three children: Mary (24, mechanical engineer from Purdue), Lil Ray (17, musical prodigy) and Katie who is 23 and happens to have Down syndrome. Ray is very involved in the Down Syndrome Indiana DADS group.