Saturday, March 26th


General Session

Specialty Workshop

Self-Advocate Workshop

9:00-10:15am ET 

Check out the On-Demand Workshops and Visit our Sponsor Pages and Exhibitor Gallery!

10:45am-12:00pm ET

Diversity and Inclusion in Down Syndrome Research: NIH and the INCLUDE Project

Colleen Hatcher, Senior Manager of Community Relations, National Down Syndrome Society; Sujata Bardhan, PhD, Health Scientist Administrator, DS-Connect Registry Coordinator, Intellectual & Developmental Disabilities Branch, Eunice Kennedy Shriver NICHD, National Institutes of Health

Supporting People with Down Syndrome and Their Mental Health Care Needs

Kerim M. Munir, MD, DSc, Director of Psychiatry, University Center for Excellence in Developmental Disabilities (UCEDD), Division of Developmental Medicine, Boston Children’s Hospital, Harvard Medical School

DS-ASD Toolkit of Strategies

Teresa Unnerstall, DS-ASD Consultant and Author

Music, Me, and You!

Billie Junget, MT-BC, Roman Music Therapy; Emily Hawley, MT-BC, Roman Music Therapy

12:30-1:45pm ET

Alzheimer’s Disease Research Focus: Updates on Current and Upcoming Clinical Trials

Diane Chan, MD, PhD, Post-doctoral Fellow/Tsai Lab, MIT; James Hendrix, PhD, Chief Scientific Officer, LuMind IDSC Foundation; Li-Huei Tsai, PhD, Picower Professor of Neuroscience, Picower Institute For Learning and Memory, Department of Brain and Cognitive Sciences, Massachusetts Institute of Technology

The Future Starts Now: Optimizing Health and Development for Children with Down Syndrome from Birth to 5 with Practical Tips for Families and Cutting Edge Research

Emily Jean Davidson, MD, MPH, RYT; Nicole Baumer, MD, MEd, Director, Boston Children’s Hospital Down Syndrome Program

Amplifying the Voices of Diverse Maternal Experiences

Jessica Avila, MSW, LICSW, Diversity Outreach Coordinator, Massachusetts Down Syndrome Congress; Marline Gordon; Patria Espinal; Rachel Wilkins-Thurman; Tatiana Salinas, Bilingual (Spanish) Community Outreach Specialist, Massachusetts Down Syndrome Congress

Access to Theater: Improv and Storytelling

Maureen Finnerty, Movement Director, Access to Theater, Partners for Youth with Disabilities

2:15-3:30pm ET

Toilet Training Time: You’ve Got This!

Leah Cohen, MSN, CPNP, Developmental Medicine, Boston Children’s Hospital

Care for the Givers: 30-Minute Gentle and Restorative Yoga Offering Marlene Boyette, Registered Trauma Informed Yoga & Meditation Facilitator/Wellness Facilitator

Vision Boards: Making Your Dreams Come True!

Felicia Patti, MDSC Self-Advocate Advisory Council Member, Actress

4:00-5:15pm ET

The Intersection of Down Syndrome and Diversity, Equity, and Inclusion

Andrew McCormick, MD, Associate Professor of Pediatrics, University of Pittsburgh School of Medicine; Kishore Vellody, MD, Professor of Pediatrics at University of Pittsburgh School of Medicine and Medical Director, Down Syndrome Center of Western Pennsylvania; Shauntel Neal-Howe, President, National Down Syndrome Congress Board of Directors

New Parents: Sharing Our Stories

Angela Lombardo, Program Coordinator, Down Syndrome Program at Boston Children’s Hospital; Emily Jean Davidson, MD, MPH, RYT, Boston Children’s Hospital; Sarah Cullen, Family Support Director, Massachusetts Down Syndrome Congress

Sunday, March 27th




Self-Advocate Workshop

10:45am-12:00pm ET

Obesity, Diet, and Exercise: Recommendations and Practical Strategies for Families

Dominica Nichols, PhD, RD, LDN, Clinical Nutritionist, MGH Down Syndrome Program; James Hendrix, PhD, Chief Scientific Officer, LuMind IDSC Foundation; Nicolas M. Oreskovic, MD, MPH, Assistant Professor, Harvard Medical School/Massachusetts General Hospital; Richard Fleming, PhD, Professor Emeritus, University of Massachusetts Boston

Inclusion Principles to Engage ALL Students

Savanna Flakes, EdS, Education Consultant

Voices of Siblings: Including Brothers’ and Sisters’ Perspectives

Marina Simons-Fulton, MA, CCC-SLP; Patrick Cullen; Sam Stark, LICSW

12:30-1:45pm ET

Update in Pediatric Hypoglossal Implantation for Severe Sleep Apnea

Christopher Hartnick MD Professor of Otolaryngology, Massachusetts Eye and Ear, Harvard Medical School

D.A.D.S. (Dads Appreciating Down Syndrome) – Sharing and Connecting

Jeff Roback, President and Founder of Dads Appreciating Down Syndrome (D.A.D.S.) of Massachusetts, an Affiliate of MDSC; Luis Castillo, MDSC Dad; Ray Glowner, Active Member of D.A.D.S. of Down Syndrome Indiana; Robby Ketchell, MDSC Dad

Spending and Saving: Basics of a Budget

Ariana DiBiasio, Senior Tax Associate, PricewaterhouseCoopers; Lydia Rego, Senior Tax Associate, PricewaterhouseCoopers

2:15-3:30pm ET

Alzheimer’s Disease: Aging and Family Support

Florence Lai, MD, Assistant Professor of Neurology, Harvard Medical School, Neurologist, Massachusetts General Hospital; James Hendrix, PhD, Chief Scientific Officer, LuMind IDSC Foundation; Kenneth Rockwood MD FRCPC, FRCP Professor of Geriatric Medicine & Neurology, and the Kathryn Allen Weldon Professor of Alzheimer Research, Dalhousie University, Halifax Nova Scotia, Canada

ADHD and Down Syndrome: Medical and Psychosocial Considerations

Clorinda “”Clo”” Cottrell, MSW, LICSW- Clinical Social Worker, MGH Down Syndrome Program; Joanne Goughan, Parent; Michelle L Palumbo, MD, Pediatrics and Psychiatry, Massachusetts General Hospital

Grandparents Share and Connect

Sue Laing, Co-Leader of MDSC Grandparents Support Group

Building Habits for Health: Making Nutrition Work for You!

Ashley DeNoble, MDSC Self-Advocate Advisory Council Member; Dominica Nichols, PhD, RD, LDN, Clinical Nutritionist, MGH Down Syndrome Program

4:00-5:15pm ET

Executive Function Skills at School & Home

Kristen Jacobsen, MS Co-Director Cognitive Connections

Augmentative and Alternative Communication (AAC): Picking the Right App for You!

Dan Phillips, AAC/AT, Director, Technology Resource Center of Marin

Dance Party with DJ Dan’o!

Dan McLean, DJ Dan’o Entertainment